An Interprofessional Approach to Developing Family Psychosocial Support Programs in a Pediatric Oncology Healthcare Setting

BACKGROUND: The Standards for the Psychosocial Care of Children with Cancer and their Families provide a framework for the delivery of psychosocial care to families experiencing pediatric cancer. Similarly, the Pediatric Psychosocial Preventative Health Model (PPPHM) guides intervention approaches by identifying three tiers of psychosocial support based on a family's level of risk. Employing both the Standards and the PPPHM, we developed a comprehensive three-tiered approach to support the psychosocial needs of families in a pediatric oncology setting. METHODS: After publication of the Standards, our institution merged existing psychosocial disciplines into one unified Psychosocial Services department. The new department worked to clearly define the role and scope of each discipline's practice to ensure the psychosocial needs of patients and families were being comprehensively met. Interprofessional workgroups were established to evaluate and enhance the psychosocial services offered to patients, siblings, and caregivers using a three-tiered model of support. Membership included representation from patients and parent/caregiver advisors to ensure their perspectives were included in program development. RESULTS: Over ten new programs have been developed to enhance the support of families facing pediatric cancer. At the Universal tier, new programs available to all families include caregiver and sibling support groups, a caregiver podcast, and a relationship health toolkit and workshop. At the Targeted tier, psychosocial interventions and parent mentor supports were implemented. At the Clinical/Intervention tier, a partnership was developed with an external tele-mental health company to provide mental health services to caregivers with significant needs or preexisting mental health disorders. CONCLUSIONS: Given the complex needs of families facing pediatric cancer, use of an interdisciplinary approach is paramount to successful support throughout the treatment trajectory. By leveraging the expertise and strengths of diverse disciplines with the perspectives of patients and families, new psychosocial programs can comprehensively address the unique challenges of patients and families impacted by illness.